Posts Tagged: my health
Rebounding But Below Normal
So I was not re-admitted on Monday, because while my numbers are coming back up, they haven’t returned to normal levels yet, so the doctors thought it was better to delay it another week, at least. My next appointment is Tuesday (because of the holiday Monday), and they’ll just be looking for my blood counts to be in normal ranges.
My ANC was above 1000, platelets were at least 67, and hemoglobin was like 8.7 or something, so I’m not too concerned about bleeding or getting sick, but still get winded pretty easily with too much physical exertion.
In the meantime I’ve returned to programming zeeify, but I can’t seem to get the image pyramid to reconstruct the original image correctly.
I wrote a tips & tricks page for trippygram, but it could probably use a lot of editing/cleaning up/cutting down, and eventually it’d probably be nice to incorporate it into the app itself.
Numbers Update
I had an appointment to get my blood checked yesterday, and I didn’t need any transfusions, which was nice. I made some good progress on the puzzle in the waiting room. I go back Thursday, and then have it done up in Lebanon next Monday, which if everything is doing well I’ll get re-admitted for another week and do this all over again! I’m feeling okay, kinda tired still, but by the amount expected for my hemoglobin I suppose.
My ANC, the sort of first line of defense white blood cells was 0.17, on Thusday it was 0.01, and on Wednesday I had zero detectable white blood cells so the ANC wasn’t even measured. Normal is 1.4-7.7, I don’t know exactly what would be enough to be re-admitted Wednesday but it seems like theres a good chance I will be.
Other than that I guess I should be drinking more water.
Bottoming Out
So I had appointments Wednesday and Thursday, Wednesday my white blood cell count was 0 — neutrophils are a type of white blood cell, so they were 0 as well. Thursday they were 0.01, so maybe they’re starting to bounce back, my next check is on Monday so I’m staying in this weekend and wearing a mask when I have to be in public. I had another blood transfusion on Thursday but my platelets (28) were still well above the transfusion threshold (20), so that was reassuring. A doctor told me usually it bottoms out in days 10-14, but I was on day 16 Wednesday, and that wasn’t surprising because the first couple rounds of chemotherapy had really done a number on my immune system. So I’ve been unconcerned about it.
Getting prescriptions transferred and refilled has been a lot more annoying than I would have otherwise expected, but I think I have it all straightened out finally.
Longer term my next appointment with the doctors is Monday the 23rd, and if my numbers look good they’ll admit me for another round of consolidation chemotherapy — so I get to look forward to repeating all this again in the next few weeks. After that I guess we’ll be looking at how to get someone else’s immune cells into me, but so far the donor search hasn’t found any 10 of 10 matches. If they can’t find any match I guess they’ll do a partial match, which carries a greater risk that the donated immune system could mistake me for a foreign invader and attack me. I haven’t asked what we do if that happens, I guess I’ll ask as we get closer to that.
In other news I’m working on a toy idea inspired by curved crease origami, and just ordered a sample of a flexible material to see how much the idea might work out, so I’m kind of excited about that.
Resting at Home
So things are going well, I’m at home, feeling alright, and after my last dose of cytarabine my blood counts should be dropping (and then rebounding) over the course of this or next week.
Today I was asked to rate my overall health by a representative of my heath insurance, and yesterday I was asked the same question by a nurse at a cardiology appointment. I didn’t say excellent, but then I did say very good, with the exception of having leukemia — how to balance the two? I want to say that, since no one knows how this will play out, that it’s not really right to say I’m doing good or not, but then I guess the fact is I could be doing worse, but not much better, so in that sense, yes, I’m doing as well as can be expected maybe?
I had a cardiology appointment on Monday so they could see how the pericardial effusion was doing (that was when there was fluid around my heart), it was good news, there is no sign of it.
Today (Thursday) I had a checkup in case my hemoglobin or platelets were so low I would need a transfusion, but they were a bit above that concern, so I got to come home quick and easy. I have two more appointments like that next week, Monday and Thursday, but this is all routine expected stuff.
So for now I’m just taking things very easy, and feeling okay about it!
cody
First Round of Consolidation
So it’s been a few days since I’ve updated — as has been the routine lately, this post is about my health.
The Second Followup
This is a post about my health, so feel free to skip it if you’re not interested. Thanks.
My First Followup
